As the child grows to adulthood, family life usually begins to extend more and more to community life, and interactions with non-family members may need careful management. Additionally, once a child leaves school, there is a strong likelihood of social services involvement, if this has not already been accessed by the family.
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PERSATUAN SINDROM PRADER-WILLI MALAYSIA
Family Life
- Caring for yourself and other family members (PDF)
- Birth - 5 years (PDF)
- 5-13 years (PDF)
- 13-18 years (PDF)
- Grandparents (PDF)
- Information for Brothers and Sisters (PDF)
- Telling your child about PWS (PDF)
- Making a Will and setting up a Trust (PDF)
- Coming To Terms With Diagnosis (PDF)
- Government Allowances (PDF)
VN 2514 
BR 2387 
US 1516 
CN 807 
SG 514 
MX 348 
GB 328 
HK 275 
